While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners. Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Chloroquine mechanism in the body Hydroxychloroquine medscape Symptoms worse before better. I know you shouldn’t ask for medical advice on reddit but if i am feeling great and have an amazing diet on top of drinking juices. May 07, 2012 Saturday was a week since I stopped taking Plaquenil, aka Hydroxychloroquine, per my doctor's instructions, and I think I am going through some form of withdrawal. I took the drug as a treatment for sarcoidosis and one of the side effects is a reduction in white blood cells, which is what has happened to me. On plaquenil always made me feel very bad. hate it. before my diagnosis I was tired,aneamic,stiff etc since the plaquenil I jus flare all the time. it was so bad I just came off it for several months. got so ill they wanted me to go on chemo based drugs but I did not want that either. so reluctantly went back on the plaquenil. imo its made me worse. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies."Hydrochloroquine (Plaquenil) has been a blessing for me. Reviews that appear to be created by parties with a vested interest in the medication will not be published. Plaquenil worse before better reddit Treating Lupus with Anti-Malarial Drugs Johns Hopkins Lupus., Plaquenil Withdrawal – Life As An Anomaly Treatment of discoid lupus erythematosus with chloroquine I'm back on it and waiting the 3-4 months it takes to work at least that's how long it took the first time. I have a great opthamologist who has assured me he will catch retinal damage before I will ever notice a change in my vision, so as far as I'm concerned, I want to stay on Plaquenil until I'm forced off it. Plaquenil Drug and Medication User Reviews on RxList. When starting hydroxychloroquine do symptoms feel.. Does Plaquenil actually work for you? autoimmunity -. Bartonella can cause eye issues. My children and I have bad Lyme and our insurance is still covering the oral antibiotics but only 90 days of the IV ones. Hang in there you can get better and don't run from treatment if things get worse because we all know that we get worse before we get better with this stew of diseases. I really think you should take the meds and talk to your doctor about other options if the side effects are too much. Most insurance companies need you to rule out certain meds before trying others so I wouldn't waste time in case it gets worse before it gets better. Hello all, My wife had Lupus and was taking Plaquenil 200mg daily. I hesitated posting this because, unfortunately, I don’t have a happy ending. But I think everyone taking Plaquenil needs to know the risks. My wife passed away in July from Hydroxychloroquine Plaquenil Intoxication. Apparently this is very rare like 5 people in the world.